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MEActionUK

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Severe ME Awareness Day

 

Denigration by Design II

 

Coercion as Cure?

 

The Defiance of Science

Malcolm Hooper and Margaret Williams

 

What the Experts say about ME

 

Engaging with ME

Professor Malcolm Hooper

(a video presentation)

 

Scottish Parliament Debate

A Cure for ME

(including video footage)

 

What is ME? What is CFS?

 

The Gibson Parliamentary Enquiry

 

Turning the Tide

 

Ramsey's ME © Accept no Substitute

 

The Simple Definition of ME

 

A Hypothesis on the Aetiology of ME

 

The Symptoms of ME

 

Treatments for ME

 

The Dangers of Fad Treatments

 

Dr Ann MacIntyre on Living with ME

 

The Countess of the Cause

 

Deadly Sheep Dip

 

Research Study Database

 

The "chronic fatigue syndrome"

 

Simon Wessely - In His Own Words

 

Reform of the Mental Health Act

 

 

 

 

 

 

RealAlternative

 

 

Thank you for visiting this site

visits since 25th November 2006

Approximately 24,652 visits between

March 2003 and November 2006

 

 

I'd like to thank Del Kennedy for donating the beginnings of this web site to me back in 1998 when I started out my time in campaigning.

 

GMT

Welcome to MEActionUK

10 Downing Street ME Petition


12th  November 2012

Professor Simon Wessely’s award of the inaugural John Maddox Prize for his courage in the field of ME and Gulf War Syndrome

Professor Malcolm Hooper (with members of the ME community)

View


Malingering and Illness Decception

Peter W. Halligan,

Christopher Bass

and

David A. Oakley

View


 

Thursday 8th October 2009

Breaking News

Scientific Research Breakthrough

Retrovirus XMRV significantly linked to Myalgic Encephalomyelitis and Chronic Fatigue Syndrome

Read More here....


 

May 3rd 2008

The Sophia Mirza Archive

Compiled by her mother, Criona Wilson.

The life and early death of a severely affected ME patient.

View


The Inquest into the Death of Sophia Mirza

Today, 13th June 2006, the inquest into the death of Sophia Mirza was held in Brighton Coroners Court, England.

The cause of death was stated as

'acute renal failure as a result of CFS'

Two pathologists could not agree which name to use - CFS, ME or ME/CFS.

In the end it was stated that CFS is a modern word for ME.

This is why CFS was used on the death certificate.

The pathologist also said -

'ME describes inflammation of the spinal chord and muscles. My work supports the inflammation theory. There was inflammation in the basal root ganglia.'

For more information please visit the Invest In ME Web site by clicking here.

To watch a Meridian TV Interview with Sophia's mother Criona Wilson click here.

To read Sophia's story from Criona Wilson click here.


16th June 2006

Inquest Implications?

Eileen Marshall and Margaret Williams

View


13th September 2010 - This Week in Virology - Episode 98 - MLV and XMRV - .mp3 6Mb

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MEActionUK has many functions.

Firstly we are a discussion group or "chat room" open for anyone who has a personal or professional interest in the many issues surrounding the multi system impairing illness of neurological origin known as Myalgic Encephalomyelitis (M.E.).

Myalgic Encephalomyelitis, Post Viral Fatigue Syndrome and Chronic Fatigue Syndrome are all recognised as Neurological diseases by the World Health Organisation. See here and here for excerpts of ICD-10 that show the relevant entries for ME/PVFS and CFS.

MEActionUK is also an information resource.

Thank you for visitng,

Stephen Ralph DCR(D) Retired

 

 

 

esme

 

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Campaigning for Research into 
Myalgic Encephalomyelitis





MERGE

 

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Last Updated

28.02.14

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http://health.groups.yahoo.com/group/MEActionUK

Severe ME Awareness Day - 8th August 2013

The UK Rituximab trial for ME

 

 

 

 

 

 

 

 

 

 

Sensationalism v Science

Responce to the Sunday Times

Wessely says he is misunderstood

Science and Psychiatry 22.07.11

Corporate Collusion?

Comment on the NICE Guidelines

Klimas,  Wessely and NICE:  Redefining CBT?

NICE:  GIGA (GARBBAGE-IN, GARBAGE-OUT)?

Wessely Woodstock and Warfare

ME Judgements

Dx Revision Watch

Magical Medicine

The Secret MRC Files on ME

Prejudice-based Medicine? Reasons for Judicial Review of the NICE Guideline on “CFS/ME”

Deliberate Deceit or Inexcusable Ignorance?

Essential investigations for people with ME/CFS?

Wessely’s Way:  Rhetoric or Reason?

Whiter than white?