Further Articles

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28th March 2016

The PACE Trial did not go unchallenged for five years

 

Margaret Williams

 

View

 


 

27th February 2014

ME/CFS is an organic disorder

 

Professor Malcolm Hooper

View

 


 

28th October 2013

 

Professor Sir Simon Wessely – Right or Wrong?

 

Margaret Williams

 

View


 

The Role of the Science Media Centre and the Insurance Industry  in ME/CFS:

the facts behind the fiction

 

 

Professor Malcolm Hooper           September  2013

 

View .pdf

or right click the link and select "save as" to save the .pdf to your PC

 

 


 

 

4th August 2013

 

‘Recovery’ in PACE, the 6 Minute Walking Test and Other Issues:

How Well Can ‘Recovered’ Patients Walk?

 

Susanna Agardy  (Australia)

 

In the recent issue of Psychological Medicine several letters commenting on the PACE recovery paper (White et al 2013a) noted the absence of published data showing the relationship between the self-reported recovery scores and the results of the 6 Minute Walking Test (6MWT).  (Agardy, Maryhew, Shepherd, 2013) http://www.meassociation.org.uk/?p=16209

 

View

 


 

2nd August 2013

The UK Rituximab Trial for ME

Professor Malcolm Hooper Margaret Williams

View

 

 


 

12th June 2013

A formal request for Liaison Psychiatry to cease and desist.

Stephen E. Ralph DCR(D) Retired.

View

 


 

Norwegian ME Award 2013

Awarded to Professor Malcolm Hooper

View

 


 

Some Inconvenient Truths

In Support of ME Awareness Day

12th May 2013

View

 

 


 

 

5th May 2013

 

Sensationalism versus Science?

 

Malcolm Hooper and Margaret Williams

 

View

 

 


 

 

30th March 2013

 

The Achilles heel of Liaison Psychiatry

 

By Stephen Ralph DCR(D) Retired

 

 

View

 

 


 

 

Comments on the PACE debate held in the

House of Lords (Grand Committee) on 6th February 2013

 

View

 

.pdf

 

 


 

 

23rd February 2013

 

For the attention of Professor Sir Simon Wessely, Professors Peter White OBE and Michael Sharpe

 

Margaret Williams

 

View

 

 


 

29th January 2013

(updated 19.03.13)

Behçet's disease, systemic vasculitis, auto-immune disease, Myalgic Encephalomyelitis and Chronic Fatigue Syndrome

By Stephen Ralph DCR(D) Retired.

 

View

 


 

6th February 2013

House of Lords

Countess of Mar

Short PACE Debate

 

Download the video and audio here...

(right click on each link and select "Save As...")

High Quality .avi (538Mb)

Standard Quality .avi (245Mb)

Low Quality .avi (133Mb)

Audio only .mp3 (42Mb)

 

 

 


 

29th January 2013

 

Professor White and Professor Wessely's response to the Countess of Mar

Here is the response to the Countess of Mar's letter from Professor White and Professor Sir Simon Wessely:

View

 


 

26th January 2013

 

Continuing Correspondence Between Countess of Mar

and Professor Peter White and Professor Sir Simon Wessely

 

View

 


 

 

13th January 2013

 

Latest Independent on Sunday correspondence

 

 

On Sunday 25th November the UK newspaper, the Independent on Sunday, published an article, "ME: bitterest row yet in a long saga" (1)  which led to the publication of  a letter signed by 27 signatories, which was published on the 2nd December (2).

 

Today, in response to this, the following letter has been  published in the Independent on Sunday, in both the hard copy and on-line:

View

 


 

 

Arise, Sir Simon

 

Margaret Williams      29th December 2012

 

View

 

.pdf

 


 

 

17th December 2012

 

Further correspondence between

Professor Simon Wessely and the Countess of Mar

 

View

 

 


 

 

12th December 2012

 

More Wessely - Mar Correspondence

 

View

 


 

 

From: MAR, Countess
Sent: 12 December 2012 10:36
To: 'Wessely, Simon'
Subject: My letter of 5 December 2012

 

Dear Professor Wessely

 

I am sure you will appreciate the importance of my letter of 5 December 2012. Please will you answer the central question: do you still believe that ME/CFS is “perpetuated predominantly by dysfunctional beliefs and coping behaviours”?

 

The rancour that persists seems to result from the incompatible and, seemingly, irreconcilable views about why patients with ME/CFS continue to experience exercise intolerance, fatigue, pain and other incapacitating symptoms for long periods following a viral infection or other environmental exposure.

 

The psychological model, which you first proposed, argues that these symptoms result predominantly from physical deconditioning secondary to fear of activity. Almost without exception, this model is not consistent with the experience of patients with a diagnosis of CFS/ME; nor is it consistent with the data from the FINE and PACE trials, as well as a significant bio-medical evidence base, which all suggest that the patients are correct.

 

It is my hope that we can find a way out of the current impasse; that we clarify where we agree and disagree, and that we find the means to advance the science of ME/CFS to the benefit of millions of patients worldwide who are now living their lives in the shadows of despair.

 

I look forward to hearing from you soon.

 

Yours sincerely

 

Mar

.htm

.pdf

 


 

4th and 5th December 2012

Correspondence between

The Countess of Mar and Professor SImon Wessely

 

View

View

See also:

Bringing in the Quacks

View ,htm

View .pdf

 

Bringing in the Quacks

 

Professor Wessely’s reference to the Lord's debates in his recent reply to the Countess of Mar reminded me that he and Sharpe had threatened the BMJ, with the result that the Countess's remarks had been removed from their website.

So I can't go repeating what she said. 

But I can follow Simon's prompt to look up the original. And I can facilitate others to do the same.

So Simon gets an extra dose of - well-deserved - bad publicity.

I don't think that's what he intended.

View

 


 

2nd December 2012

 

The Saga of Science

 

Professor Malcolm Hooper

 

 

View

 

 


 

27th November 2012

Professor Simon Wessely says he is misunderstood

Margaret Williams

View

 

See also....

Anglia ME Action

Wessely Misleading Clinicians and others?

A call for an Inquiry...

View

Download the Inquiry Letter to send to your MP here

 


 

15th November 2012

 

The rewards of science in the UK

 

Professor Malcolm Hooper and members of the ME community

 

View

.pdf

See the Independent on Sunday article here

 


 

18th November 2012

 

Ruffled feathers?

 

Margaret Williams

 

View

 


 

12th  November 2012

Professor Simon Wessely’s award of the inaugural John Maddox Prize for his courage in the field of ME and Gulf War Syndrome

Professor Malcolm Hooper (with members of the ME community)

 

View

 


 

29th September 2012

Response to Damian Thompson's article on ME

View

 


 

 

21st July 2012

 

 

Lest we forget

 

 

Margaret Williams

 

View

 


 

 

UPDATE ON THE PACE TRIAL

 

Professor Malcolm Hooper

hoopersecundus@talktalk.net

 

11th July 2012

 

 

View

 

Briefing Notes for meeting with BIS officials about incorrect answers to Parliamentary Questions re: the MRC-funded PACE Trial and ME/CFS

 

Professor Malcolm Hooper

hoopersecundus@talktalk.net

 

June 2012

 

View

 


 

22nd May 2012

 

Responses to PACE questions tabled by the Countess of Mar in the House of Lords

 

 

View

 


 

On 7th May 2012 Professor Malcolm Hooper provided The Countess of Mar with a list of questions about the PACE Trial (“Questions submitted by Professor Malcolm Hooper to The Countess of Mar re: the PACE Trial for the attention of the Minister of State for Universities and Science, the Rt Hon David Willetts MP, who is responsible for the Medical Research Council”).
 
The Countess of Mar kindly agreed to re-word and table the questions to which Her Majesty’s Government are obliged to provide answers (“PACE Questions as tabled”), these having being refined by her to 6 key questions.   
 
One question was altered by the Clerk and it is notable that the second question  -- “To ask Her Majesty’s Government which disease or condition was being studied in the PACE Trial” -- was not put in by the Clerk, but the Countess of Mar assures us that it should go in today.
 
Please check progress on the Parliamentary website.

 

7th May 2012

Questions submitted by Professor Malcolm Hooper to The Countess of Mar re: the PACE Trial for the attention of the Minister of State for Universities and Science, the Rt Hon David Willetts MP, who is responsible for the Medical Research Council

Malcolm Hooper and Margaret Williams

View

________________________

 

Countess of Mar

Questions for Written Answer

 

         To ask Her Majesty’s Government to confirm that it is necessary for a publicly funded trial to be properly registered in the ISRCTN (International Randomised Controlled Trial Number) Register; that this is a condition for publication in reputable journals and, if so, whether they are satisfied that the PACE (Pacing, graded Activity and Cognitive behaviour therapy: a standardised Evaluation) Trial registration ISRCTN54285094 is complete and includes records of all changes in procedure from the point of registration onwards.

         To ask Her Majesty’s Government which disease or condition was being studied in the PACE Trial that was co-funded by the Medical Research Council, the Department of Health for England and Wales, the Department for Work and Pensions and the Scottish Chief Scientist’s Office in light of the statement made by the Chief Principal Investigator, Professor Peter White, that the PACE Trial did not purport to be studying ME (a synonym for CFS/ME), when all the trial documentation, ethical approval and funding refer to CFS/ME.

         To ask Her Majesty’s Government when and why the PACE Trial sponsor was changed from the MRC Clinical Trials Unit to The Medical Research Council and then to the Queen Mary University of London (UK) and why these changes are not recorded in the ISRCTN Register and the sponsors are described in the Lancet: 2011, 5th March: 377:823-836 as the Medical Research Council, the Scottish Chief Scientist’s Office, the Department of Health for England and Wales and the Department for Work and Pensions.

         To ask Her Majesty’s Government why the recovery statistics and other outcomes as defined in the published Protocol of the PACE Trial have not been published in view of their importance to the funders and the public interest.

         To ask Her Majesty’s Government why the “normal range” for both PACE Trial primary outcome measures (fatigue and physical function) were re-defined so that it was possible for a participant to deteriorate on both measures during the course of the Trial yet still fall within the Chief Principal Investigator’s “normal range” .

         To ask Her Majesty’s Government, in the light of the non-conformity of the PACE Trial with ISRCTN Register requirements, what is the legal position of the Medical Research Council as co-funder regarding the subsequent reliance by the National Institute for Health and Clinical Excellence and the Department for Work and Pensions on the outcome as reported in the Lancet.

View

 


 

4th February 2012

Questions for Professors Frank J M van Kuppeveld and Jos W M van der Meer

 

Margaret Williams

View

 


 

27th December 2011

Defending the indefensible?

Margaret Williams

View

 


 

 

Statistics and ME

September 2011

Professor Malcolm Hooper

View

.pdf

(this article is also available on the Invest in ME website)

 


 

Important development from the DWP regarding ME/CFS

In response to Professor Hooper's correspondence with the Department of Works and Pensions regarding their classification of ME/CFS and their failure to address the issues, the Countess of Mar contacted Lord Freud, Minister for Welfare Reform.

The Countess of Mar has received a reply which can be seen at the first link below. 

This significant letter states: “... I can be clear that the DWP does not classify CFS/ME as a mental health disorder”. Lord Freud also unreservedly apologised to Professor Hooper: “... let me apologise unreservedly for the handling of Professor Hooper’s correspondence”. 

http://www.meactionuk.org.uk/Freud-reply-to-Mar.pdf 

To view Professor Hooper's correspondence with the DWP please see here:http://www.meactionuk.org.uk/Responses-from-the-DWP.htm

View

 


 

Grey” Information about ME/CFS   Part 3:   1994

Margaret Williams               November 2011

 

View

 

Part 1 of these extracts from the grey literature on ME/CFS from 1956 – 1990 can be seen at:
http://www.meactionuk.org.uk/Grey-information-on-ME-CFS.htm

Part 2 of these extracts from 1991 – 1993 can be seen at:
http://www.meactionuk.org.uk/Grey-Information-Part-2.htm

 

 

 


 

 

Doctors and Bankers: Unaccountable Professions?

 

 

Margaret Williams     4th November 2011

 

 

View

 

 


 

 

Responses from the DWP about the Department’s classification of ME/CFS

 

Margaret Williams     1st November 2011

View

 


 

 

Wessely’s Words Revisited

 

Malcolm Hooper    30th July 2011

 

with acknowledgement to members of the ME community

View

 


 

 

PACE Trial Results: an Update

 

Margaret Williams   9th June 2011

View

 


 

 

Professor Malcolm Hooper’s Detailed Response to Professor Peter White’s letter to Dr Richard Horton about his complaint re: the PACE Trial articles published in The Lancet

 

28th May 2011

 

View

 


 

 

Lancet podcast, February 18th 2011: “Authors discuss the results of the PACE trial concerning treatment strategies for chronic fatigue syndrome.” 

This podcast was part of the PACE Trial Press Conference held at the Science Media Centre on the 17th February 2011

View


 

 

Initial response by Professor Malcolm Hooper to an undated letter sent by Professor Peter White to

Dr Richard Horton, Editor-in-Chief of The Lancet

 

18th May 2011

 

View

 


 

Action for ME and its latest links to the Insurance Industry

 

Margaret Williams      9th May 2011

 

View

 


 

19th April 2011

Comment on PACE statement by Sir Peter Spencer of Action for ME

Margaret Williams

View

 


 

REPORT: COMPLAINT TO THE RELEVANT EXECUTIVE EDITOR OF THE LANCET ABOUT THE PACE TRIAL ARTICLES PUBLISHED BY THE LANCET

Comparison of adaptive pacing therapy, cognitive behaviour therapy, graded exercise therapy, and specialist medical care for chronic fatigue syndrome (PACE): a randomised trial    PD White et al

published online February 18, 2011 DOI:10.1016/S0140-6736(11)60096-2      (FAST TRACKED)

and

Chronic fatigue Syndrome: where to PACE from here?    G Bleijenberg and H Knoop

published online February 18, 2011 DOI:10.1016/S0140-6736(11)60172-4

Submitted by Malcolm Hooper, Emeritus Professor of Medicinal Chemistry

(with grateful acknowledgment to members of the ME/CFS community)

March 2011

View

Download in Microsoft Word .doc format

 


 

16th April 2011

The Media and ME

Margaret Williams

View

 


 

9th April 2011

Extracts from Professor Leonard Jason’s Presentation at the NIH State of the Knowledge Workshop on ME/CFS

Bethesda, Maryland,  7th, 8th April 2011

 

 

Margaret Williams

View

 


 

31st March 2011

The involvement of the PACE Trial Principal Investigators and the Director of the Clinical Trials Unit with the Department for Work and Pensions

 

 

Margaret Williams

 

View

 


 

20th January 2011

From Margaret Williams:
 
A response to Professor Hooper's complaint about the MRC PACE Trial has just been received from Frances Rawle, PhD, Head of Corporate Governance and Policy.
 
It is a five page letter and concludes: "I believe that none of your complaints can be upheld, and that your concerns are groundless and without substance.  We will therefore be taking no further action in this regard".
 
The whole letter will be scanned and made public in due course.

 


 

7th Letter to Government Minister re. MRC PACE Trial Complaint

Margaret Williams

20th January 2011

View

 


 

6th letter to Government Minister re. MRC PACE Trial Complaint

Margaret Williams

6th January 2011

View

 


 

9th December 2010

MRC Complaint Update

Letter to David Willetts

By Margaret Williams

View

(Note: At the time of posting (16.12.10) this letter has still not received a reply)

 


 

Clarification  from  Dr  William Weir

 

Margaret Williams    7th December 2010

http://www.meactionuk.org.uk/Yvette-Cooper-correction.htm

_._._._

From: William Weir
Sent: Wednesday, December 08, 2010 11:44 PM
To: reader@guardian.co.uk

Subject: Yvette Cooper and ME/CFS - misquote

Sir

I enjoyed reading the recent Yvette Cooper interview. Nonetheless as her
consultant when she suffered from ME/CFS (which she put into the public
domain in an article in the Independent and also the Daily Mail) I have to
put right the assertion that "90% of people recover from ME" The correct
statistic is that 90% of recoveries occur in the first year, not 90% of
people recover. I would be very grateful if you could arrange to publish
this correction as the misconception that "90% of people recover" distorts
the true picture of a disease in our community which wrecks the lives of in
excess of two hundred thousand people, both sufferers and their carers.

William RC Weir

 


 


Twenty-five years of the Barts Fatigue Service

Margaret Williams 1st December 2010

http://www.meactionuk.org.uk/Twenty-five-years-of-the-Barts-Fatigue-Service.htm

http://www.meactionuk.org.uk/Twenty-five-years-of-the-Barts-Fatigue-Service.pdf

 


 

Documented evidence of inflammation in ME/CFS

Margaret Williams            30th November 2010

http://www.meactionuk.org.uk/Documented-evidence-of-inflammation-in-ME.htm

http://www.meactionuk.org.uk/Documented-evidence-of-inflammation-in-ME.pdf

 


 


29th November 2010

Margaret Williams

ALLERGIES AND MULTIPLE CHEMICAL SENSITIVITY
IN MYALGIC ENCEPHALOMYELITIS / CHRONIC FATIGUE SYNDROME

http://www.meactionuk.org.uk/Allergies-and-MCS-in-ME-CFS.htm

http://www.meactionuk.org.uk/Allergies-and-MCS-in-ME-CFS.pdf

 


 

9th October 2010

Knowledge or Belief?

Margaret Williams

View

 


 

 

8th October 2010

 

Another secret file on ME/CFS comes to light

Margaret Williams

It is notable that two of the funders of the UK PACE Trial on "CFS/ME" (the MRC and the DWP) have separate secret files on ME/CFS held at the UK National Archives.

Firstly, the MRC files (Item reference FD 23/4553/1) containing records and correspondence
covering the period 1988-1997, which are closed for 73 years (ie.until January 2071):

http://tinyurl.com/yfdt8gm

And secondly, the DWP files (Piece reference BN 141/1) which have only recently come to light and refer to "Medical Policy" on ME/CFS, covering the period from 1984 to 1993. They are closed for 78 years (ie. until January 2072):

http://tinyurl.com/2w9gs8z


It is also worth recalling that members of the CMO's Working Group were threatened with having to sign the Official Secrets Act and in June 2000 were issued with a warning that even if not covered by the Act, the status of other documents referring to ME/CFS was "RESTRICTED", a classification that relates to "sensitive issues" and which, if disclosed, might carry a severe penalty. The notification further stated: "Papers not so marked are nevertheless considered confidential....The presumption is that such papers would in due course be made available to the public...but that the timing and means of release should be controlled by the authors...or by the secretariat, as appropriate".

That the Official Secrets Act might have been invoked was confirmed by the Parliamentary Under Secretary of State at the Department of Health, Lord Hunt of Kings Heath, in a letter dated 23rd October 2000 and it is notable that the reasons he gave for protecting information relating to the work of the CMO's Working Group on ME/CFS were that it may be: "confidential information obtained by a Crown servant from a foreign state or international organisation" and "information in the possession of a Crown servant the disclosure of which would impede a criminal process".

The question arises, are there any other illnesses where information is classified for such a long period - the customary period being 30 years, not 78 years? For example, it is known that papers relating to multiple sclerosis are locked away for only 30 years.

What is so secret about ME/CFS that both the MRC and the DWP feel the need to lock away documents relating to this illness?

Further information: http://tinyurl.com/32fczyu

 

 


 

7th October 2010

MRC PACE Trial Letter

by Professor Malcolm Hooper

View

 


 

7th September 2010

So near yet so far – from Mission Accomplished?

Margaret Williams

View

 


 

 

29th August 2010

 

Memo to NICE re: CG53 revision

 

Margaret Williams

 

View

 


 

 

25th August 2010

Update on Complaint to the MRC about the PACE Trial in the light of the confirmation of a strong association of a retrovirus with myalgic encephalomyelitis/chronic fatigue syndrome

 

Margaret Williams

 

View      

 


 

 

HIDING YOUR HEAD IN THE SAND IS DANGEROUS TO YOUR HEALTH.

 

Gurli Bagnall

 

Published - 24th August 2010

 

“…the reduction of intelligence is an important factor in the curative process. 

I say this without cynicism.

 The fact is that some of the very best cures one gets

 are in those individuals whom one reduces to amentia [simple mindedness].”

 

 - Dr. Abraham Myerson

View

 


 

17th May 2010

Letter to the Editor of The Guardian

"The growing understanding of ME shown in the recent article (The trouble with ME 14/05/10) by your medical correspondent, Sarah Boseley, is most welcome. However, there are a number of significant errors and omissions in the article."

From Professor Malcolm Hooper

View

 


 

1st March 2010

Ethical and Scientific Concerns about the MRC PACE Trial

Malcolm Hooper

Emeritus Professor of Medicinal Chemistry

University of Sunderland

 

View

.pdf 

___________________________________

 

14th April 2010

Response from the National Patient Safety Agency

to Complaint about the PACE Trial

Margaret Williams

 

View

.pdf

 


 

20th March 2010

Submission re: DSM-V and ME/CFS

Compiled by Professor Malcolm Hooper and Margaret Williams

for submission by The 25% ME Group

View

.pdf

 


 

8th March 2010

Some XMRV Thoughts

Stephen Ralph

 

View


 

 

26th February 2010

Comments on yet more anti-XMRV spin and an apparant attmempt to bury

any association between XMRV and "CFS/ME"

Stephen Ralph

View

 


 

19th February 2010

Letter to Sir Michael Rawlins Chairman of NICE

From Malcolm Hooper Ph.D.,B.Pharm.,C.Chem.,MRIC

Emeritus Professor of Medicinal Chemistry

View

See also: Reasons for Patient Disenchantment - Horrace Reid

and Magical Medicine - Malcolm Hooper


 

Submitted to BMJ.com 15 Feb 2010 12.47 GMT, as a Rapid Response to:

EDITORIALS:
Alastair M Santhouse, Matthew Hotopf, and Anthony S David
Chronic fatigue syndrome
BMJ 2010; 340: c738

Reasons for Patient Disenchantment

Horace Reid

View


 

18th February 2010

The Ramsay Research Fund - What is it being used for?

By Stephen Ralph

View

 


 

February 12th 2010

Magical Medicine:

How to make a disease disappear

Professor Malcolm Hooper

___________________________

 

View .pdf here

442 pages - 6Mb file size

Press Release and MRC Complaint

View

 


 

30th December 2009

Documented involvement of viruses in ME/CFS

Margaret Williams 

View

.pdf

 


 

17th December 2009

Can the MRC PACE Trial be justified 

 

Margaret Williams

 

View

.pdf

 


 

12th December 2009

 

Statements of Concern about CBT/GET provided for the

High Court Judicial Review of February 2009

 

Margaret Williams

View

.pdf

 


 

10th December 2009

The Medical Research Council’s secret files on ME/CFS

Margaret Williams

View

.pdf

 


 

21st  November 2009

The role of viruses in ME/CFS:  what, if any, will be the effect of the discovery linking XMRV toME/CFS on the MRC PACE Trial?

Margaret Williams

View

.pdf

 


 

14th November 2009

More evidence of inflammation in (ME)CFS

Margaret Williams

View

.pdf

 


 

 

9th October, 2009

PROVE IT!
By
Gurli Bagnall


 
I would like to thank  Tom Kindlon for his recent
Co-Cure postings on quotes from Dr. Bill Reeves (of CFS research at the CDC)
and his second in command, Dr. James Jones.

View


 

8th October 2009

Breaking News

Major Scientific breakthrough links the

XMRV Retrovirus to Chronic Fatigue Syndrome

View

 


 

 

26th August 2009

Interstitial cystitis and Chronic Fatigue Syndrome

Margaret Williams

View

.pdf

 


 

19th August 2009

Openness and Transparency

Professor Malcolm Hooper

View

.pdf

--------------------------------------------------------------

 

The One Click Group's 2006 "Conversion" to Lyme Disease

View


 

5th August 2009

 

Judicial Review of the NICE Guideline on CFS/ME:

A response to misleading information on the internet

Professor Malcolm Hooper

View

.pdf

__________________________________

 

Jane Bryant's One Click reaction to Professor Hooper's Statement

View

 


 

29th July 2009

STATEMENT FROM PROFESSOR MALCOLM HOOPER

View

 


 

23rd July 2009

Documented pathology seen in ME/CFS that

contra-indicates the use of Graded Exercise Therapy

Margaret Williams

View

.pdf

 


 

22nd July 2009

Statements of Concern about Cognitive Behavioural Therapy

and Graded Exercise Therapy

provided for the High Court Judicial Review of February 2009

 

Margaret Williams

View

.pdf

 


 

The CISSD Project and CFS/ME Report on the CISSD Project

(Conceptual Issues in Somatoform and Similar Disorders)

for Action for ME

by Richard Sykes

(Report to be read in conjunction with the Co-ordinator's Final Report)

"An international and expert project supported by AfME"

December 2007

View

.pdf

 

THE CISSD PROJECT 2003-2007


(Conceptual Issues in Somatoform and Similar Disorders) FINAL REPORT OF CO-ORDINATOR (Richard Sykes PhD, CQSW)

(8 Page Summary Document)

View

.pdf

 


 

3rd May 2009

ME/CFS: Classification Issues 

 

Margaret Williams

View

.pdf

 

 


 

27th April 2009

ME/CFS:   TERMINOLOGY

 

Margaret Williams

 

View

.pdf

 


 

 

26th April 2009

Evidence that ME/CFS is not a somatisation disorder

 

Margaret Williams

 

View

.pdf

 


 

April 2009

Fitting the Puzzle Together

By Gurli Bagnall

View

.pdf

 


 

28th February 2009

Why the CISSD Project MUST fail

Stephen Ralph

 

View

.pdf

 


 

Research References Update

December 2008

View

.pdf

See also Research Study Database here

 


 

1st January 2009

Enough is Enough.

Stephen Ralph

View

.pdf

 


 

30th  December 2008

A NICE Conundrum?

Margaret Williams

View

.pdf

____________________________

 

22nd December 2008

ME/CFS:  UK versus UK

Margaret Williams

View

.pdf

____________________________

 

15th December 2008

A  NICE  DILEMMA?

Margaret Williams

View

.pdf

 


 

22nd November 2008

The Countess of Mar

Margaret Williams

View

.pdf

 


 

22nd November 2008

CONSPIRACIES AND BETRAYAL:
 Is NICE really nice?
 
Gurli Bagnall

 
“Not another conspiracy theory?” The cry will go up as this book hits the shops.  It will be heard especially from the smart commentators and senior politicians, who will exude an air of experienced superiority over  the naïve and gullible who dare to give the time of day to anything the politicos sneeringly call a conspiracy theory.  It is the new insult from the established classes."

Opening paragraph of the Preface in:
“The Strange Death of David Kelly”
by Norman Baker MP

View

.pdf

 


 

27th  October 2008

Prejudice-based Medicine?

Reasons for Judicial Review of the NICE Guideline on “CFS/ME”

Margaret Williams

View

.pdf

 


 

27th August 2008

Medication and ME/CFS?

Margaret Williams

View

.pdf

 


 

17th August 2008

More Zombiefication of ME/CFS?

Margaret Williams

View

.pdf

 


 

15th August 2008

Zombie Science in ME/CFS?

Margaret Williams

View

.pdf

 


 

25th May 2008

Faculties Failure?

Margaret Williams

View

.pdf

 


 

24th April 2008

Concerns about the RSM Conference on 28th April 2008 on “CFS” 

Margaret Williams

View

.pdf

See Also:

25th April 2008

A Follow-up to “Concerns about the RSM Conference”

 Margaret Williams

View

.pdf

 


 

22nd March 2008

Wessely’s Way:  Rhetoric or Reason?

Malcolm Hooper      Margaret Williams

View

.pdf

malcolm.hooper@virgin.net

 

 


 

 

10th March 2008

EVIDENCE OF EFFICACY?

Margaret Williams

View

.pdf

 


 

4th March 2008

Deliberate Deceit or Inexcusable Ignorance? 

Margaret Williams

View

.pdf

 


 

26th January 2008

Breaking a Silence

By Gurli Bagnall

View

.pdf

“You only have power over people as long as you
don’t take everything away from them.
But when you’ve robbed  a man of everything, he’s no longer
in your power  - he’s free again.”

Alexander Solzhenistyn


 

16th January 2008

Essential investigations for people with ME/CFS? 

Margaret Williams

View

.pdf

 


 

2nd January 2008

More potential dangers of the UK NICE Guideline on “CFS/ME”

for people with ME/CFS?  

Margaret Williams

View

.pdf

 


 

18th November 2007

National Instiute of Health and Clinical Excellence "CFS/ME" Guidelines discussed on BBC Breakfast News

Stephen Ralph

View

.pdf

 


 

19 November, 2007

An open letter to Professor Peter White

By Gurli Bagnall

New Zealand

 

View

.pdf

 


 

6th November 2007

Whiter than white?  

Margaret Williams

View

.pdf

 


 

 

24th October 2007

 

NICE:  GIGA (GARBBAGE-IN, GARBAGE-OUT)?

 

Margaret Williams

 

View

.pdf

 


 

12th October 2007

UNUM UNITED?

 

Eileen Marshall and Margaret Williams

 

View

 

.pdf

 

 

UNUM Investigated on the BBC 10 O clock News - 6th November 2007

 

(6.92Mb wmv video file)

 

View

 


 

21st September 2007

 

COERCION AS CURE?

 

 

Eileen Marshall         Margaret Williams

 

View

 

.pdf

 

 


 

 

SEPTEMBER  2007

 

CORPORATE COLLUSION?

 

 

The UK Medical Research Council has a secret file on Myalgic Encephalomyelitis (ME) that contains records and correspondence since at least 1988; the file is held in the UK Government Archive at Kew and cannot be opened until 2023.  This present document is an overview of the misinformation and contradictions about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) that have pervaded some UK Departments of State and other agencies since 1988.  It also considers the involvement of certain UK psychiatrists who have proven vested interests in the propagation of this misinformation that is contrary to world-wide scientific evidence and that for two decades has resulted in the medical abuse of UK patients with ME/CFS.

 

Professor Malcolm Hooper        Eileen Marshall                 Margaret Williams

 

Contact address:  malcolm.hooper@virgin.net

 

 

View

 

.pdf

 


 

29th August 2007

 

Comments on the NICE Guideline on “CFS/ME”

 

Margaret Williams

 

 

View

 

.pdf

 


 

10th August 2007

Wessely, Woodstock and Warfare

Margaret Williams

View

.pdf

 


 

20th July 2007

The Defiance of Science

Professor Malcolm Hooper and Margaret Williams

View

.pdf

 


 

12th May 2007

Promises,  Promises ? 

Margaret Williams

View

.pdf

 


 

1st March 2007

NICE Tactics

Margaret Williams

View

.pdf

 


 

21st February 2007

BBC Radio Ulster ME Debate

View

.pdf

 


 

19th February 2007

Facts from Florida

Margaret Williams

View

.pdf

 


 

6th February 2007

Notes for NICE

Margaret Williams

View

.pdf

 


 

5th December 2006

A response and Appreciation of the Gibson Inquiry Report 

Malcolm Hooper

View

.pdf

 


 

29th November 2006

A few facts about the Gibson Inquiry Report

Margaret Williams

View

.pdf

 


 

26th November 2006

The Gibson Parliamentary Inquiry Report

Read a detailed summary of this report

at 10pm on Sunday 26th November 2006

View

Download a locked Adobe .pdf version here

View Horace Reid's Digest Format here

Read the report itself at the Gibson Inquiry Website

View

or download the full report in .pdf format directly from here

and read the Press Release here

 


 

19th November 2006

A Medical Morass

Margaret Williams

View

.pdf

 


 

10th November 2006

Klimas,  Wessely and NICE:  Redefining CBT? 

Margaret Williams

View

.pdf

 


 

19th October 2006

Some Concerns about the National Institute for Health & Clinical Excellence (NICE) Draft Guideline issued on 29th September 2006  on Diagnosis and Management of Chronic Fatigue Syndrome / Myalgic Encephalomyelitis in Adults and Children

Margaret Williams

(Nominated Respondent with The 25% ME Group for the Severely Affected)

View

Download and view the Adobe pdf version here

Update

23rd October 2006

Addendum

View

or download the pdf here


 

19th September 2006

Incessant Belief?

Eileen Marshall    Margaret Williams

View

.pdf

 


 

2nd September 2006

Compassion Control?

Margaret Williams

View

.pdf

 


 

 

23rd August 2006

CBT in ME/CFS  -- More Information  

Eileen Marshall     Margaret Williams     

View

.pdf

 


 

18th August 2006

ME Exists:    True or False?

 

Eileen Marshall        Margaret Williams

View

.pdf

 


 

30th July 2006

An Action for ME Survey says that 80% of those asked said they approved of the service provided or "8 out of ten owners said their Cats preferred it......"

By Stephen Ralph

View

.pdf

 


 

28th July 2006

An Open Letter to Ms Audrey Adcock

By Gurli Bagnall

View

.pdf

 


 

19th July 2006

A Farewell Message for Professor Wessely? 

Margaret Williams

View

.pdf

 


 

17th July 2006

Informal notes on the issue of funding biomedical research into ME/CFS

Margaret Williams

View

.pdf

 


 

13th July 2006

For the attention of the Gibson Inquiry

Eileen Marshall      Margaret Williams

 

View

.pdf

 

 


 

7th July 2006

STATEMENT FROM MARGARET WILLIAMS

 

View

.pdf

 


 

6th July 2006

Concern about misinformation to the Gibson Inquiry

Margaret Williams

View

.pdf

 


 

1st July 2006

Notes re the evidence of Raymond Perrin PhD to the Gibson Parliamentary

Inquiry into ME

Eileen Marshall    Margaret Williams

View

.pdf

 


 

17th June 2006

CIVILIZATION:
ANOTHER WORD FOR BARBARISM
By
Gurli Bagnall


View

.pdf

 


 

16th June 2006

Inquest Implications?

Eileen Marshall and Margaret Williams

View

.pdf

 


 

12th June 2006

A gleam of light at last? 

Eileen Marshall     Margaret Williams

View

.pdf

 


 

25th May 2006

FURTHER TO MARSHALL AND WILLIAMS:
The Deified Doctor Syndrome (DDS)
By
Gurli Bagnall

View

.pdf

 


 

24th May 2006

Response to Doctors’ Campaign Against Alternative Therapies

Eileen Marshall     Margaret Williams      

View

.pdf

 


 

12th May 2006

Cognitive Impairment?

Eileen Marshall   Margaret Williams

View

.pdf

 


 

26th April 2006

Alice Green (UK)  versus  the CDC  (USA)?

Eileen Marshall    Margaret Williams

View

.pdf

 


 

7 April, 2006

THE CHEMICAL PLAGUE
By
Gurli Bagnall

View

.pdf

 


 

5th April 2006

Campaigning for research into Myalgic Encephalomyelitis

RiME

NHS 'CFS/ME' Centres Condemned

View

.pdf

 


 

31st March 2006

Some of the abnormalities that have been demonstrated in ME/CFS

Eileen Marshall      Margaret Williams

 

View

.pdf

 


 

26th March 2006

Brief  comments on the DWP proposed entry on “CFS/ME”

(version 8 of  March 2006)

Margaret Williams

View

.pdf

 


 

21st  March 2006

More on the Myth?

Eileen Marshall    Margaret Williams

View

.pdf

 


 

17th March 2006

The Model of the Myth?

Eileen Marshall         Margaret Williams

View

.pdf

 


 

13th March 2006

The UK National Service Framework and ME/CFS

Margaret Williams

View

.pdf

 


 

13th February 2006

Letter to the Lancet

CFS, Benefits, & the Creation of Stigma

Ian McIlroy

View

.pdf

 


 

 

5 February, 2006

MATTERS ARISING OUT OF THE WESSELY LECTURE AT GRESHAM COLLEGE.
 
By
Gurli Bagnall

View

.pdf

 


 

3rd February 2006

Letter to the Lancet

Compassion Deficit Reciprocated

By Horace Reid

View

.pdf

 


 

Date: 30th January 2006

From: gwsme4real@yahoo.co.uk


Report of London Protest against Simon Wessely on 25 Jan 2006

View

.pdf

 


 

26th January 2006

Professor Hooper's letter to Gresham College

View

.pdf

___________________________________

 

28th January 2006

Comments from Professor Malcolm Hooper on the Gresham College lecture by Professor Simon Wessely entitled: “Something old, something new, something borrowed, something blue: The true story of Gulf War Syndrome”

(delivered on 25th January 2006)

View

.pdf

 


 

24th January 2006

Letter to Dr Kieran Walsh

re: How to put NICE guidelines into practice

(BMJ 2006:332:143)

Malcolm Hooper (Emeritus Professor of Medicinal Chemistry)

Eileen Marshall

Margaret Williams

View

.pdf

 


 

20th January 2006

Pinching’s Perception?


Eileen Marshall Margaret Williams


View

.pdf

 


 

3rd December 2005

Somatization and somatoform disorders

Author(s): Elena Garralda
doi: 10.1383/psyt.2005.4.8.97

Psychiatry

View

.pdf


Print ISSN: 1476-1793
Volume: 4 | Issue: 8 Child psychiatry 3
Cover date: August 2005
Page(s): 97-100

-------------------------------------------

Comment from

Stephen Ralph

View

.pdf

 


 

 

FOR UK PARLIAMENTARY INQUIRY INTO ME

FOR UK PARLIAMENTARY INQUIRY INTO ME/CFS

Chronological list of documents relevant to the Inquiry authored by

Professor Malcolm Hooper, Eileen Marshall and Margaret Williams


View HTML Version

View Locked .PDF Version

 


20th November 2005

Evidence-based Policy or Policy-based Evidence?

Professor Malcolm Hooper Eileen Marshall Margaret Williams

View

.pdf

 


 

13th November 2005

 

BEFORE THE LIGHT DIES.

By

Gurli Bagnall

 

View

.pdf

_______________________

Do not go gentle into that good night.

Rage, rage against the dying of the light.

Dylan Thomas

_____________________


 

30th October 2005

Which Interventions are Helpful to Patients with ‘CFS/ME’?

A REVIEW OF THE EVIDENCE

Produced by ScotME

for the

CROSS PARTY PARLIAMENTARY GROUP on ME : August 2005

View

.pdf

 


 

1st October 2005

A Personal Statement from Dr Charles Shepherd

View

.pdf

 


 

10th September 2005

Unanswered Questions: do inconsistencies matter in medicine?

Margaret Williams

View

.pdf

 


 

2nd September 2005

Proof Positive?

Eileen Marshall and Margaret Williams

Note: This is a long article and it may take some of you some considerable time and effort to read it but it is more than well worth the effort......

View

.pdf

4th September 2005

More Proof Positive?

Eileen Marshall and Margaret Williams

View

.pdf

 


 

31st August 2005

Following the post on Co-Cure ACT.MED: The Undeserving Sick on 30 August 2005 from Professor Michael Sharpe in which he claimed that comments he made in a public lecture in 1999 have been taken out of context, Margaret Williams has released her copy of Sharpe's actual lecture notes so that people may judge for themselves.

View

.pdf

 


 

18th August 2005

ME:  WHY NO ACCOUNTABILITY?

A synopsis for the UK Parliamentary Inquiry

Professor Malcolm Hooper

& Margaret Williams

View

.pdf

 


 

13th August 2005

A FINAL FAREWELL TO THE PSYCHIATRIC FALLACY?

Margaret Williams

View

.pdf

 


 

2nd August 2005

ME:  Organic or Psychiatric --- Decision Time?

Eileen Marshall       Margaret Williams

 

View

 

.pdf

 

 


 

16th July 2005

Another Meadow?

Eileen Marshall and Margaret Williams

View

.pdf

 


 

12th July 2005

Of concern to all, and in particular to sufferers of
ME/ICD-CFS, MCS, GWS and FM:

WHAT IS IT ABOUT PSYCHIATRY?

Gurli Bagnall

View

.pdf

 


 

28th June 2005

Vade MEcum

(a “vade mecum” is a small reference guide containing information that is frequently consulted)

Eileen Marshall and Margaret Williams

View

.pdf


 

26th June 2005

Politically-modified Research

Eileen Marshall and Margaret WIlliams

View

.pdf

 


 

19th June 2005

PRiME - Sending Us Around in Circles

Stephen Ralph

View

.pdf

 


 

18th June 2005

Questions for the MRC

Eileen Marshall

Margaret Williams

View

.pdf

 


 

12th June 2005

Evidence Based Psychiatry

Eileen Marshall and Margaret Williams

View

.pdf

 


 

26th May 2005

WARNING: UK Prime Minister’s Strategy Unit on Mental Health

 

Eileen Marshall     Margaret Williams

 

 View

.pdf

 

28th May 2005

Conflicting Concepts?

Eileen Marshall       Margaret Williams

View

.pdf

 


 

23rd May 2005

ME DVD Controversy

Professor Malcolm Hooper

View

.pdf

 


 

17th May 2005

BBC Radio 4

The World Tonight

Reform of Incapacity Benefit

Download .mp3 here

 


 

9th May 2005

Ellen Goudsmit PhD and the “London” criteria : THE FACTS

Margaret Williams

View

.pdf

===========================================

Why is this Important?

A Personal View by

Stephen Ralph

View

.pdf

===========================================

11th May 2005

 

Some Observations on the more important points made by

Miss Ellen Goudsmit PhD in her “formal response” of

10th May 2005 .pdf

to concerns about the ‘London’ criteria

By Margaret Williams

 

View

 

.pdf

===========================================

14th May 2005

The “London” criteria:  QED

 By Margaret Williams

 

View

 

.pdf

 

===========================================

 

16th May 2005

 

The “London” criteria: 1990 versus 1993

By Margaret Williams

 

View

 

.pdf

 

===========================================

 

18th May 2005

 

Correct Citation for the “London” criteria?

Margaret Williams

 

View

 

.pdf

 

===========================================

19th May 2005

Rebuttal of misinformation about the “London” criteria

Margaret Williams

View

.pdf

===========================================

21st May 2005

Ellen's Discrepancies..... again.

Stephen Ralph

View

.pdf

 


 

7th May 2005

Megalomania in Modern Medicine?

Margaret Williams

View

.pdf

 


 

4th May 2005

For the attention of All Members of Parliament - Old and New

Margaret Williams

View

.pdf

 


 

29th April 2005

Vilified but Vindicated? 

Malcolm Hooper Eileen Marshall Margaret Williams

View

.pdf

 


 

26th April 2005

CDC Provides Clarification At Last

Margaret Williams

View

.pdf

 


 

21st April 2005

High Standards at the MRC

By Eileen Marshall and Margaret Williams

View

.pdf

 


 

15th April 2005

Profits Before Patients?

Eileen Marshall and Margaret Williams

View

.pdf

 


 

29th March 2005

Science or Psychology?

Margaret Williams

View

.pdf

 


 

21st March 2005

MYALGIC ENCEPHALOMYELITIS (ME)  

the impact on sufferers: is health policy in Scotland on the right path?

This is a Briefing Paper that has been sent out to all Scottish MSP's via the Cross Party Group

View

.pdf

 


 

5th March 2005

ME: who is attacking whom?

Eileen Marshall   Margaret Williams

View

.pdf

 


 

2nd March 2005

A Call for Help from the ME community

By

Stephen Ralph

View

.pdf

 


 

2nd March 2005

More Medical Malfeasance in ME?

Eileen Marshall     Margaret Williams

View

.pdf

 


 

28th February 2005

RiME

Campaigning for Research into Myalgic Encephalomyelitis

APPG Chair supports use of Oxford Criteria

View

.pdf

 


 

23rd February 2005

Problems and Solutions ?

Eileen Marshall       Margaret Williams

View

.pdf

 


 

22nd February 2005

Royal Liverpool & Broadgreen University Hospitals NHS Trust

Patient Care Trust Job Title

for a Trainee "Fatigue" Therapist

Epsom and St Helier NHS Trust

Job title:

Highly Specialist Clinical Psychologist

in Chronic Fatigue Syndrome Management

View

.pdf

 


 

22nd February 2005

My Question to Professor Colin Blakemore

CEO of the Medical Research Council on the

BBC Radio Five Live Simon Mayo Programme

View

.pdf

 


 

13th February 2005

Notes for UK Members of Parliament about ME/ICD-CFS

Margaret Williams

View

.pdf

 


 

23rd January 2005

COMMENTS ON RECENT OUTPUT BY ONECLICK

DM Jones MSc

View

.pdf

 


 

16th January 2005

Wessely’s Wisdom?

Some more open questions for Professor Wessely

Margaret Williams

View

.pdf

 


 

15th January 2005

ME campaigners or serial intimidators and abusers of ME patients?

By Stephen Ralph DCR(D) Retired

View

.pdf

 


 

 

13th January 2005

Information about One Click

Margaret Williams

View

.pdf

10th January 2005

ONE CLICK TOO FAR ?

Margaret Williams

View

.pdf

 


 

5th January 2005

Myalgic Encephalomyelitis / Chronic Fatigue Syndrome

and Fibromyalgia:

additional considerations for the MRC

in relation to the PACE trials

Margaret Williams

View

.pdf

 


 

28th December 2004

SHAMS AND CHEATS

By

Gurli Bagnall

View

.pdf

 


 

8th December 2004

SCIENCE or SEMANTICS?

Margaret Williams

View

.pdf

 


 

28th November 2004

Chronic Illness Report 6

Epidemic (Chronic) Fatigue Syndrome:

Post-Viral Fatigue Syndrome (PVFS)

View

.pdf

 


 

10th November 2004

Deliberate Dichotomy?

Eileen Marshall and Margaret Williams

View

.pdf

 


 

5th November 2004

Reflections on the US  ME/CFS Research Symposium Report

Eileen Marshall and Margaret Williams

View

.pdf

 


 

1st November 2004

CRITICAL CONSIDERATIONS

Margaret Williams (former medico-legal researcher)

View

.pdf

2nd November 2004

Clarification about CRITICAL CONSIDERATIONS

Margaret Williams

View

.pdf

 


 

28th October 2004

An Inquiry by the UK House of Commons Health Select Committee into the Influence of the Pharmaceutical Industry

Margaret Williams

View

.pdf

 


 

27th October 2004

Campaigning for

Research into Myalgic Encephalomyelitis

What follows are the first three pages of RiME's Autumn 2004 Newsletter.

View

.pdf

 


 

MEitis?

A SLENDER STRING TO OUR BOW

Gurli Bagnall

24 October, 2004

 

If we give up our power to the authorities….,

we submit ourselves to the domination of others over us…

without control over our destiny, it drives us towards

sickness, aging, death.

(“The Medical Mafia” Guylaine Lanctot, M.D.)

View

.pdf

 


 

24th October 2004

 Paradoxical Proliferation of Professorial Psychiatry?

Margaret Williams

View

.pdf

 


 

17th October 2004

Transparency in Government?

Eileen Marshall and Margaret Williams

View

.pdf

 


 

16th October 2004

Note on the term “Myalgic Encephalomyelitis”

Eileen Marshall      Margaret Williams

View

.pdf

 


 

14th October 2004

An open letter to the "Wessely School" psychiatrists

Margaret Williams

View

.pdf

 


 

9th October 2004

THE CEREBELLUM HYPOTHESIS

Comments on and quotations from an introductory essay on cerebellar involvement in ME/CFS entitled
"The Cerebellum Synthesis : Chronic Fatigue Syndrome and the Cerebellum" written in 1997 by PR Celsus

Margaret Williams

View

.pdf

 


 

30th September 2004  

ME Research (UK) 

Eileen Marshall & Margaret Williams

View

.pdf

 


 

13th September 2004

The dangerous dominance of Psychiatry in ME/CFS

By Stephen Ralph DCR(R) Retired

View

.pdf

 


 

6th September 2004

FACTS about the “London” Criteria

View

.pdf

 


 

6th September 2004

Testimony Presented at the Enquiry into

the Gulf War Illnesses

and

"scientific progress" in Psychiatry.

By

Gurli Bagnall

View

.pdf

 


 

28th August 2004

Observations on Professor Simon Wessely’s evidence to  Lord Lloyd’s

Public Inquiry into Gulf War Illnesses

Eileen Marshall and Margaret Williams

View

.pdf

 

(If you would like to read a transcript of the evidence given by Professor Wessely to the public enquiry detailed above then you can do so by clicking here .pdf)


 

July 2004

PSYCHIATRY AND PERFIDY 

By Gurli Bagnall

July, 2004 

“Academic psychiatry has all but lost contact with the population it is supposed to serve….Criticism is, if not activelydiscouraged, then politely but very firmly ignored.” 

N. McLaren, M.D.Psychiatrist, Australia, 1999

View

.pdf

 


 

31st July 2004

Malcolm Hooper and Margaret Williams ask Peter White some questions

View

.pdf

 


 

17th July 2004

Quotable Quotes about ME/CFS

compiled by Margaret Williams

View

.pdf

 


 

The British Journal of Psychiatry (2004) 185: 95-96

IN DEBATE

There is only one functional somatic syndrome*

View

.pdf

 


 

28th June 2004

A Warning to the ME/CFS Community

Margaret Williams

It is a matter of record that there is mounting awareness and concern over
the increasing manipulation of science and medicine by global corporations with vested interests which now amounts to a stranglehold.

View

.pdf

 


 

25th June 2004

INFORMATION ON MYALGIC ENCEPHALOMYELITIS (ME) FOR THE USE OF THE MEDICAL RESEARCH COUNCIL (MRC) AND THE NATIONAL INSTITUTE FOR CLINICAL EXCELLENCE (NICE)

Margaret Williams

View

.pdf

 


 

20th June 2004

Issues re the use of the Oxford criteria for the MRC “CFS” Trials

Margaret Williams

View

.pdf

 


 

20th June 2004

Illustrations of research findings and informed medical opinion about ME / ICD- CFS which psychiatrists of the Wessely School seem to dismiss, trivialise or completely ignore

View

.pdf

 


 

6th June 2004

Sinister Science

By Margaret Williams

View

.pdf

 


 

7th April 2004

Some Documents of Relevance to the ME/CFS Community

View

.pdf

 


 

3rd April 2004

Time for a Reality Check at the UK Department of Health?

By Margaret Williams

View

.pdf

 


 

April 2004

A Million Stories Untold

By Jodi Bassett

View

 


 

26th March 2004

Perceptions of Progress?

By Margaret Williams

View

.pdf

 


 

22nd March 2004

SOME QUESTIONS ABOUT ME/CFS TO WHICH CREDIBLE ANSWERS ARE URGENTLY REQUIRED

 

(prepared for The Countess of Mar’s various meetings with MRC, MPs and Ministers in March /April 2004 by Professor M Hooper in collaboration with the ME/CFS community)

View

.pdf

 


 

6th March 2004

More misinformation on ME/CFS?

Margaret Williams

View

.pdf

 


 

10th January 2004

THE MENTAL HEALTH MOVEMENT:
PERSECUTION OF PATIENTS?


A CONSIDERATION OF THE ROLE OF PROFESSOR SIMON WESSELY AND OTHER MEMBERS OF THE "WESSELY SCHOOL" IN THE PERCEPTION OF
MYALGIC ENCEPHALOMYELITIS (ME) IN THE UK


Background Briefing for the House of Commons Select Health Committee

"No progress will be made unless everyone helps to publicise the facts contained in this document to all health professionals, to Members of Parliament and to the media"

View

.pdf

 


Click here to visit the newsroom for details of the recent House of Lords Debate and speech by the Countess of Mar (available in text and audio mp3)


23rd December 2003

THE U.S. COMMITTEE FOR JUSTICE
AND RECOGNITION OF MYALGIC ENCEPHALOMYELITIS


December 8, 2003


Public Statement

To

The CFS Advisory Committee,
US Department of Health and Human Services
and Dr Fields, for Secretary Thompson

Why Are We All Here?

Since the 1934 California outbreak of Atypical Polio, a long record of cases and outbreaks of our disease have been observed. There was an increasing frequency of outbreaks during the 1950's, which brought greater interest to our disease. Dr Melvin Ramsay and others further defined the illness, and Myalgic Encephalomyelitis (ME) became the recognized term for this neurologic infectious disease.

View

.pdf

 


 

17th October 2003

Professor Wessely's own lecture notes on ME (12 May 1994)

To end speculation about authenticity, Margaret Williams has released her copy of Simon Wessely's own lecture notes from which she took the quotations
in her recent article (Consideration of Simon Wessely's response to The Scotsman). In his notes, a * indicates where he showed illustrative slides during his lecture. The lecture was indeed audio-taped but the tape has never been publicly released.

View

.pdf

 


 

18th August 2003 to 8th September 2003

An exchange of letters between the Countess of Mar and the Dean of the Institute of Psychiatry Dr George Szmukler relating to the wrongful classification of ME/CFS.

View

.pdf

 


 

September 2003

Notes on recent research in ME/ICD-CFS

and the Government’s policy of denial

During August and early September 2003, Stephen Ladyman MP, Parliamentary Under Secretary of State for Health / Community Care in the UK Labour Government of Mr Blair, has been busy responding to letters about what he refers to as “CFS/ME”.

View

.pdf

 


 

June 2003

Notes on the involvement of Wessely et al with the Insurance Industry and how they deal with ME/CFS claims

View

.pdf

 


 

12th April 2003

UNUM Provident, Dr Michael Sharpe and Cognitive Behavioural Therapy: Information which the Medical Research Council might wish to consider.

View

.pdf

 


 

9th April 2003

SOME FACTS AND FIGURES ON CBT. GET AND OTHER APPROACHES

Directly from the ‘Horses’ Mouths’

Doris M Jones MSc (Reference Group Member, CMO’s Working Group)

View

.pdf

 


 

27th March 2003

Conference Report

American Association for Chronic Fatigue Syndrome (AACFS)

6th International Conference on Chronic Fatigue Syndrome,

Fibromyalgia and Related illnesses

Friday 31 January to Sunday 2 February 2003

Chantilly, Virginia (Washington DC)

Dr Neil C. Abbot

Director of Operations

View

 


 

6th March 2003

Matters for the MRC RAG on "CFS/ME" to consider

Margaret Williams brings two further points to the attention of the MRC Research Advisory Group on "CFS/ME".

View

.pdf

 


 

4th March 2003

Some salient points arising from the AACFS 6th International Conference which the MRC Research Advisory Group on “CFS/ME” might wish to consider

These short notes have been prepared by Margaret Williams and are taken directly from the Report of the Conference by Dr Rosamund Vallings of New Zealand (available on Co Cure, 27th February 2003 or here .pdf), to whom grateful acknowledgement is made.

The Conference was held at Chantilly, Virginia, USA from 31st January to 2nd February 2003 under the auspices of the American Association of Chronic Fatigue Syndrome.

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27th February 2003

Personally Speaking - By Gurli Bagnall

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"The field of mental health is highly subjective, capricious, and dominated by whims, mythologies, and public relations. In many ways it is a pop culture with endless fads but with no real substance."

Dr. Walter Fisher, Assistant Superintendent, Elgin State Hospital.

"Power, Greed, and Stupidity in the Mental Health Racket".


 

17th February 2003

In light of the information published in the Medical Research Council Research Advisory Group (RAG) Draft Report for Public Consultation on "CFS/ME" Research Strategy dated 17th Dec. 2002, Margaret Williams has asked me to publish her critique of the Report published by the Royal Australasian College of Physicians.

This internationally criticised RACP Report published during 2001 was used, widely referred to and relied upon by members of the UK Medical Research Council (RAG) when they compiled their draft research strategy document.

A copy of the RACP critique by Margaret Williams has been sent to the Medical Research Council Research Advisory Group for the attention of Elizabeth Mitchell.

In light of all the constructive and highly detailed criticisms of the MRC (RAG) Draft Report, it is hoped that note will be made during the forthcoming review process.

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To view the RACP Guidelines click on the PDF icon below to download and view the .pdf document. To save this document to your hard disk right click on the icon below and select "Save Target As...".

(Note: It takes about 3 to 5 minutes to download this 1.32mb sized document and you will need the free Adobe Acrobat reader www.adobe.com to read it.)


 

8th February 2003

Information regarding the issue of subgroups for the attention of the Medical Research Council "CFS/ME" Research Advisory Group brought to their attention by Professor Malcolm Hooper et al.

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18th January 2003

In 1993, the BMJ carried a leading article by the editor (Richard Smith) about problems of management within the MRC; the title is  Management at the MRC: old fashioned and in need of reform. (ref: BMJ 1993:306:1627-1628).  In the same issue, there are two papers by Gillett and Harrow about the MRC.

The ME community may be interested in all three articles, extracts from which are set out below; people may wish to know if anything has really changed in the last decade.

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17th January 2003

Debunker debunked: can a comparison be made with what is happening with ME?

On 9th January 2003 The Guardian carried a report by its Environmental correspondent Paul Brown which was entitled “Debunker of global warming found guilty of scientific dishonesty”

This short piece details quotes from the article that have relevance to the ME community...

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16th January 2003

Considerations of some issues relating to the published views of Psychiatrists of the Wessely School in relation to their beliefs about the nature, cause and treatment of myalgic encephalomyelitis (ME)

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15th January 2003

Margaret Williams reviews quotations from "SOMATIC MEDICINE ABUSES PSYCHIATRY - AND NEGLECTS CAUSAL RESEARCH" by Per Dalen, January 2003

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January 2003

MEDICAL RESEARCH COUNCIL (CFS/ME RESEARCH ADVISORY GROUP) DRAFT DOCUMENT FOR PUBLIC CONSULTATION DECEMBER 17th 2002

A Response by Dr E.G. Dowsett

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December 2002

Professor Malcolm Hooper's response to the Medical Research Council Research Advisory Group Draft Report for Public Consultation on "CFS/ME" Research Strategy dated 17th Dec. 2002

.pdf

Read the original draft Report

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August 2002

Important paper which explains multiple chemical sensitivity (MCS)

Review by Margaret Williams

 

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21st June 2002

Letter to the British Journal of General Practitioners from Malcolm Hooper, Margaret Williams and EP Marshall.

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House of Lords Debate

16 April 2002 7.27 p.m.

The Countess of Mar speaks to the House of Lords regarding issues relating to ME/CFS.

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26th October 2001

Letter from Connie Nelson to the Chief Medical Officer Professor Sir Liam Donaldson.

"Towards the end of August 2001 I inadvertently stumbled across a website hosting a “GUIDE to Mental Health in Primary Care“ developed by the WHO Collaborating Centre for Research and Training for Mental Health, Institute of Psychiatry, Kings College, London."..........

.........."Realising neither ME nor CFS are classified as mental health disorders, with ME being classified in the ICD-10 under  G93.3 (neurological) and Chronic Fatigue Syndrome being index linked to the same, myself and others contacted the Collaborating Centre and the WHO Headquarters in Geneva to voice our concerns."

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29th September 2001

Professor Malcolm Hooper's composite response to the Chief Medical Officer's draft Report into CFS/ME.

The final draft of the CMO's Report was published on January 11th 2002

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View the main CMO's Report .pdf along with the annexes of the CMO's Report .pdf.


 

August 2001

CONCEPTS OF ACCOUNTABILITY?

Sally Montague Malcolm Hooper.

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July 2001

CONCERNS ABOUT THE FORTHCOMING UK CHIEF MEDICAL OFFICER’S REPORT ON ME AND CFS, NOTABLY THE INTENTION TO ADVISE CLINICIANS THAT ONLY LIMITED INVESTIGATIONS ARE NECESSARY

Sally Montague Malcolm Hooper

(known as the Montague / Hooper paper).

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2001 Clinical and Scientific Meeting

Video Review - Who will protect the Children?

By Gurli Bagnall

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December 1999

A further review, with References, of the Role of Dr (now Professor) Simon Wessely in the Perception of Myalgic Encephalomyelitis Eileen Marshall, Margaret Williams

 


DENIGRATION BY DESIGN? Vol II (1996-1999) (pp 271)

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September 1999

Short summary of some of the findings presented at the Second World Congress on Chronic Fatigue Syndrome and Related Disorders, Brussels, 9-12 September 1999

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February 1998

Nightingale Research Foundation

Paper Presented by Byron Marshall Hyde M.D. -

New South Wales, February 1998

Title:

Are Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Synonymous Terms?

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August 1996


A Review, with References, of the Role of Dr (now Professor) Simon Wessely in the Perception of Myalgic Encephalomyelitis Eileen Marshall, Margaret Williams

 

DENIGRATION BY DESIGN? Vol I (1987-1996) (pp 217)

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This address was given on 18th November 1995 in London by Professor Anthony Komaroff, Professor of Medicine at Harvard Medical School, Boston, USA.


(Ed: This talk was also given as the Melvin Ramsay lecture at The First World Congress on CFS and Related Disorders in Brussels on 9th November. Here Professor Komaroff refers to CFS as M.E., for benefit of the UK audience. This is the first part of Dr Komaroff's address. The second part will be printed in a future edition of 'Emerge').

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