Last Updated April 22nd 2006
Read a detailed summary of the report here
View the full report here or download the .pdf file here
View the Press Release hereand
A few facts about the Report here
Professor Malcolm Hooper's Response here
‘The Group on Scientific Research into Myalgic Encephalomyelitis (M.E.)’ will be comprised of MP's and Peers from across the political spectrum and is to be chaired by Dr Ian Gibson MP. It will conduct an inquiry, looking at the progress that has occurred since the publication of the Chief Medical Officer’s Working Group Report into CFS/ME in 2002.
Starting in January 2006, three hearings will be held as part of this inquiry. These hearings will take oral evidence from people affected by M.E., leading medical experts and government officials, before reporting next Easter.
View Press Release
This web page is designed to give MEActionUK readers a place to keep in touch with what is happening with the MP's Enquiry into ME/CFS set up by Ian Gibson MP.
If any of you reading this want to make a submission to the Gibson Enquiry then all you have to do is write a concise account of your personal history and why research would help you and the ME community.
You could list the problems you have and face with things like benefits, social services and the lack of health care available because of the lack of research.
If you face problems with a disbelieving GP then this also relevant.... a lack of research also affects the perceptions of GP's because all they have to read at present is the constant digest of bio-psycho-social psychobabble generated by Somatoform Psychiatrists supported by Action for ME who are themselves promoting Cognitive Behavioural Therapy and Graded Exercise created by the very same psychiatrists - funded by the Medical Research Council and supported by our Government.
If you have been turned away from having tests you have learned to be relevant to G93.3 Myalgic Encephalomyelitis then that is also relevant.
As long as no tests are officially sanctioned there will remain an artificial vacuum of evidence. Please note that when tests are carried out - results are found but these results are usually taken no further because of the total lack of structure that still persists within the NHS for the ME community.
If the NHS do not look then they will not find and so far those concerned are doing their very best not to look and not to find other than to create a psychobabble bubble that is fueling the current agenda of creating a network of mental health clinics who are in turn providing Cognitive Behavioural Therapy, Graded Exercise and almost nothing else for the ME community.
You can state why you think there is a need for research and how that research will help you with things like diagnostic tests and focused treatments that have nothing to do with psychiatry.
Examples of such research needs can be seen on the MERGE web site and from the genetic work of Dr Gow and Dr Kerr.
See also the recent speech given by Alex Fergusson MSP in the Scottish Parliament on why genetic research into Myalgic Encephalomyelitis could abolish the whole psychiatric bias that currently smothers any current research agenda.
Other examples of research needs can be found in numerous places on the MEActionUK web site.
It is recommended that you send your submissions in by post.
Ideally make your submission 2 pages of A4 at the most to keep it readable....
Less is often more as they say so if you are not up to 2 pages don't worry.... One page of A4 or even less with relevant comments will all be useful for the cause.
My view is - there is a use for this enquiry.
If we do make an effort and send in submissions and other information relevant to research and it all gets ignored yet again then I think we can all safely say that as we have feared for some years now - something sinister really IS going on and this can be taken further legally along with the evidence of all the other occasions when public consultations have been snuffed out.
If you have any information about the forthcoming Gibson Parliamentary Enquiry that you would like placed on this site in the public domain then please e-mail it to me here
Any submissions to the Enquiry should be sent by 1st Class Post to...
Ian Gibson MP,
House of Commons,
London SW1A 0AA
The closing date is December 20th 2005
Some people have been told to e-mail submissions to the address below but I have it on good authority that anything sent via e-mail will be "lost" and won't be used or considered in the Enquiry.
Ian Gibson MP firstname.lastname@example.org
21st April 2006
Gibson Inquiry – Day 1 April 18th 2006 - Group Testimonies.
Comments by Professor Malcolm Hooper
28th March 2006
What the Experts say about ME/CFS
(It may not be too late to bring the experts’ views recorded below to the attention of members of the Gibson Parliamentary Inquiry, a vital step if the scandal of ME/CFS in the UK is to be halted)
Submissions from ScotME
01. Covering Letter
02. Human Tragedy and Heart
04. WHO Decides?
05. Is Exercise Safe?
18th January 2006
Inadequacy of the York (2005)
Systematic Review of the
CFS/ME Medical Evidence Base.
Comment on Section 3 of
The diagnosis, treatment and management of chronic fatigue syndrome (CFS)/(ME)
in adults and children
Work to support the NICE Guidelines
carried out by
Anne-Marie Bagnall, Susanne Hempel, Duncan Chambers, Vickie Orton and Carol Forbes
Centre for Reviews and Dissemination
University of York
Professor Malcolm Hooper & Horace Reid
The diagnosis, treatment and management of chronic fatigue
syndrome (CFS) / myalgic encephalomyelitis (ME) in adults and children
Work to support the NICE Guidelines
Carried out by: Anne-Marie Bagnall, Susanne Hempel, Duncan
Chambers, Vickie Orton and Carol Forbes
Centre for Reviews and Dissemination University of York
13th. December 2005
The Group on Scientific Research into M.E.
From John Sayer
Dear Dr. Gibson,
I am enclosing two documents ("Is CFS Linked to Vaccinations?" and "Tetanus
Toxoid Vaccination") which I would like to be considered as part of the
inquiry by The Group on Scientific Research into M.E.
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THE GROUP ON SCIENTIFIC RESEARCH INTOMYALGIC ENCEPHALOMYELITIS
(THE GIBSON PARLIAMENTARY INQUIRY)
CONCERNS ABOUT A COMMERCIAL CONFLICT OF INTEREST UNDERLYING THE DWP HANDBOOK ENTRY ON MYALGICENCEPHALOMYELITIS / CHRONIC FATIGUE SYNDROME
The information in this document is relevant to the Gibson Inquiry, specifically the continued ignoring by the Department of Work and Pensions (DWP) and its commercial advisers of the compelling scientific evidence that myalgic encephalomyelitis / chronic fatigue syndrome is not a primary psychiatric disorder. If eligibility for certain benefits becomes contingent upon the intended implementation of compulsory psychiatric “rehabilitation” regimes, in cases of authentic ME/CFS it is likely to result in serious relapse that may be life-long (and may in some cases even result in death)
Professor Malcolm Hooper
Eileen Marshall Margaret Williams
7th November 2005
FOR UK PARLIAMENTARY INQUIRY INTO ME/CFS
Chronological list of documents relevant to the Inquiry authored by
Professor Malcolm Hooper, Eileen Marshall and Margaret Williams
7th November 2005
Information from Professor Malcolm Hooper
2nd November 2005
Outline of Case
Parliamentary Inquiry into ME/CFS; Outline Proposals
3rd December 2005
Parliamentary Inquiry into ME/CFS: Conversations and Terms of Reference
Dr Ian Gibson’s Parliamentary Inquiry into ME/CFS:
Response by Prof Malcolm Hooper to Press Release and Terms of Reference.
Sue and Nigel Waddle (Mr. & Mrs)
14th December 2005
Submission – Inquiry into Myalgic Encephalomyelitis
I wish you to consider the following evidence as part of your Inquiry into Myalgic Encephalomyelitis.
This pertains personally to my daughter, Lauren, who has suffered since the age of 12 and is now 20.
On July 4th this year, in the USA, a 23yr. old man called Casey Fero died of Myalgic Encephalomyelitis (ME) He had had the illness for at least fourteen years.
In that time he had coped with the ignorance and disbelief of doctors and teachers.
5th December 2005
An Open Letter to Ian Gibson MP
By Kevin Short
12th December 2005
Submission to the Gibson Enquiry
From Phillip Pierce
(further information will appear here soon)